Abstract: In Part I of this paper, we described a model that was used as a framework for reviewing studies of psychoeducational interventions intended to influence illnessand treatment-related behaviors and attitudes in pediatric cancer patients. In Part II, we distinguish between interventions that attempt to influence patients’ behaviors just by providing information and interventions that specifically teach skills related to the behaviors they are trying to change.
Kanker is een ingrijpende ziekte waar mensen uit verschillende culturen anders tegenaan kijken. De manier waarop de zorg in België is geregeld en de manier waarop dokters en verpleegkundigen met patiënten omgaan, sluit niet altijd aan bij de manier van leven van allochtone gezinnen. Tot op heden werd er weinig onderzoek gedaan bij allochtone kinderen met kanker en hun ouders. Over hun manier van omgaan met de ziekte, hun 'coping' en welke effecten dit heeft op de levenskwaliteit is nauwelijks iets geweten.
In deze pilootstudie gaan we na of het ondersteunen van kinderen met kanker en hun gezin leidt tot het ontstaan van klachten bij het psycho-pedagogisch team. Meer dan 9O % van de populatie beantwoordde de vragenlijsten, waaronder 7 psychologen en 6 pedagogisch medewerkers (d.i. met inbegrip van 1 creatief therapeut). Aan de hand van drie vragenlijsten (GHQ-28, UBOS en ZIL) hebben we onderzocht in welke mate er psychische gezondheidsproblemen, burn-out en posttraumatische stress bij het psycho-pedagogisch team is.
Door annelies_verachtert op Woe, 30/07/2014 - 00:00
Abstract: The aim was to investigate the influence of parents’ negative mood state and parenting stress on behavior in children with newly diagnosed cancer.
Methods: A total of 123 parents (n = 58 fathers, n = 65 mothers) of 67 children with newly diagnosed cancer completed three questionnaires separately at the same time measuring parents’ negative mood state, parenting stress, and child behavior problems.
Door annelies_verachtert op Ma, 30/06/2014 - 00:00
Abstract: The objectives of this study are to compare the effects of two nursing intervention models on the ability of preschool children with malignant tumors to socialize and to determine if these inter- ventions improved their social adaption capability (SAC) and quality of life.
Door annelies_verachtert op Ma, 30/06/2014 - 00:00
Abstract The principal reason for childhood cancer treatment failure in low-income countries is treatment abandonment, the most severe form of nonadherence. Two often neglected factors that may contribute to treatment abandonment are as follows: (a) lack of information and guidance by doctors, along with the negative beliefs of family and friends advising parents, which contributes to misconceptions regarding cancer and its treatment, and (b) a widespread policy in public hospitals by which children are retained after doctor’s discharge until medical bills are settled.
Door annelies_verachtert op Ma, 30/06/2014 - 00:00
Abstract: Neurocognitive late effects after childhood acute lymphoblastic leukemia (ALL) are well- documented, but their impact on quality of life (QOL) is not well understood. In this multi-site study, we examined the relative influence of neurocognitive functioning, steroid randomization (prednisone vs. dexamethasone), and demographic characteristics on QOL in first-remission survivors of childhood ALL.
Door annelies_verachtert op Ma, 30/06/2014 - 00:00
Abstract: The aims of this study were to assess the prevalence of unresolved grief in bereaved young adult siblings and examine possible contributing factors.
Methods: The study was a Swedish population-based study of young adults who had lost a brother or sister to cancer, 2–9 years earlier. Of 240 eligible siblings, 174 (73%) completed a study-specific questionnaire. This study focused on whether the respondents had worked through their grief over the sibling’s death and to what extent.
