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Kinderen en jongeren oncologie

Artikel: Can the theory of planned behavior help explain attendance to follow‐up care of childhood cancer survivors? (2018)

Objective: Childhood cancer survivors are at high risk for late effects. Regular attendance to long‐term follow‐up care is recommended and helps monitoring survivors' health. Using the theory of planned behavior, we aimed to (1) investigate the predictors of the intention to attend follow‐up care, and (2) examine the associations between perceived control and behavioral intention with actual follow‐up care attendance in Swiss childhood cancer survivors.

Website: www.Care4AYA.be

Jaarlijks krijgen in België ongeveer 800 jongvolwassenen (AYA’s = Adolescents & Young Adults) te horen dat ze kanker hebben.  De ziekte treft hen in de bloei van hun leven, wanneer ze volop in ontwikkeling zijn. Door hun leeftijd, tussen 18 en 30 jaar, vallen jongeren die kanker hebben of hebben gehad, tussen wal en schip: ze zijn te oud voor een kinderafdeling maar voelen zich ook in de zorg voor volwassenen niet altijd thuis.

Doctoraat: Resilience in pediatric oncology: Family risk and resilience factors and child behavioral adjustment

Simone Sint Nicolaas concludeert in haar proefschrift dat de meerderheid van de kinderen die gediagnosticeerd worden met kanker veel psychosociale veerkracht laten zien. Dat is goed nieuws voor kinderen die kanker krijgen en hun ouders. De meeste kinderen komen er ook in sociaal emotioneel opzicht goed doorheen. Een op de vijf heeft het daar echter moeilijk mee; ongeveer 20% gedragsproblemen die zorgen voor belemmeringen in het dagelijks leven.

Artikel: Accurate understanding of infertility risk among families of adolescent males newly diagnosed with cancer (2018)

Objective

To examine patient and parent understanding of infertility risk (relative to oncologists' risk ratings) among adolescents newly diagnosed with cancer, and to identify background factors related to inaccurate reporting/estimating.

Methods

Review: Correlates of post‐traumatic growth following childhood and adolescent cancer: A systematic review and meta‐analysis (2018)

Objective

A growing number of children and adolescents are experiencing and surviving cancer. This review aims to identify the demographic, medical, and psychosocial correlates of perceived post‐traumatic growth in individuals of any age who were affected by paediatric cancer. Findings will highlight protective factors that may facilitate post‐traumatic growth, allowing for directed social support, intervention, and follow‐up care.

Methods

Artikel: Outcomes of an enhancement study with additional psychoeducational sessions for healthy siblings of a child with cancer during inpatient family‐oriented rehabilitation (2018)

Objective: Chronic illness of a child puts healthy children of the family at risk of distress. Previous studies have demonstrated that healthy children's psychological symptoms can be reduced when the child knows more about the disease. So far, there is limited evidence of the effectiveness of psychoeducational interventions for healthy children.

Aims

To compare the effectiveness of an inpatient family‐oriented rehabilitation program with vs without additional psychoeducational sessions for healthy children of families with children with cancer.

Artikel: Parents’ perspectives of change within the family functioning after a pediatric cancer diagnosis (2018)

Pediatric cancer is a life threatening disease that challenges the life of the diagnosed child, the parents and possible siblings. Moreover, it also places considerable demands on family life. The aim of the current study was to explore changes in the family functioning after a pediatric cancer diagnosis.

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